Documents to download (in alphabetical order) :
- Protected Tomorrows
- Protected Tomorrows 2
- Finding Adults Services in your state
- 2011 Annual Report NFXF
- Developmental Trajectories in Infants with Fragile X Syndrome : Comparing FXS, autism siblings, and typical controls
- Feasibility, reproducibility, and clinical validity of the pediatric anxiety rating scale, revised (PARS-R) in fragile X syndrome
- Parent implemented language intervention using distance video-teleconferencing
- Talking with students about fragile X syndrome
- That’s an App!
- iPad Apps
- Practical ideas for play for your child with fragile X syndrome
- Forward momentum: positive behavioral approaches
- Cognitive and behavioral correlates of caudate subregion shape variation in fragile X syndrome
- AD/HD within a clinical sample of individuals with fragile X syndrome 2
- AD/HD within a clinical sample of individuals with fragile X syndrome
- Clinical trials of new medications targeting brain mechanisms in fragile X syndrome
- Building fragile X awareness in your community
- Building fragile X awareness in your community 2
- Visual wizardry: using visual supports to change your child’s life
- Hands-on hyperarousal workshop: what it feels like to be hyperaroused !
- Calming, coping and comfort – self regulation in FXS
- Living the fragile X way
- Encouraging play
- Starting, synchronizing and stopping actions and feelings
- The sensory diet concept and use of the sensory diet template
- My hands can write, my fingers can tie!
- Make & take
- Neuromotor outcome measures for clinical trials in fragile X syndrome
- A get together for those who want to maximize their learning and minimize their exhaustion
- A home of one’s own
- A home of one’s own 2
- Predictors of independence, functional and adaptive skills in adolescents and adults with fragile X syndrome
- Managing the behavior problems of children with fragile X syndrome by using medication
- Residential placement for your school aged child
- Residential schools
- How to increase advocacy efforts in your state
- Sex in the city is not just a miami vice
- Diagnostic alphabet soup : understanding how fragile X fits in with educational and behavioral diagnoses
- An isogenic fibroblast model of premutation-associated cellular phenotypes
- From wonder years to golden years: making the transition to adults services
- Transition to adulthood: supporting adults with fragile X syndrome and their families
- Toilet training guidelines: for children with FXS
- Sindrome X fragil: la historia interminable
- Evidence-based practice research: educational and therapeutic interventions for persons with fragile X syndrome
- Behavioral intervention for problem behavior in children with fragile X syndrome
- The Japanese collaborated study of fragile X syndrome and its related disorders
- Fragile X in British Columbia
- Population carrier screening for fragile X syndrome
- Visual issues in FXS
- Visual issues in FXS 2
- Use of app technology by individuals with fragile X
- School-based interventions and considerations for IEP Planning
- Educational strategies handouts
- Tough cases – A case for prescriptive treatment
- Behavioral characteristics and intervention strategies
- Assistive technology and the IEP
- Lara Bailey
- Michael Cohen
- Current symptoms of autism in fragile X syndrome
- Hyperarousal in fragile X syndrome: teenage and adult issues
- Assistive technology use by persons with fragile X syndrome: three case reports
- Hyperarousal in fragile X syndrome: transitions, IEPs and childhood issues
- Making fundraising fun
- How to organize an educational seminar
- How to organize an educational seminar 2
- Psychopharmacology (medication treatments) for behavior in fragile X syndrome
- The importance of connecting with others on your fragile X journey
- Welcome to the sorority of strong and broken hearts
- Setting the stage for success: effective strategies to enhance behavior and learning
- Fragile X testing in 2012: case studies for how new technologies improve detection of methylation mosaicism and risk of expansion
- Seclusion and restraint in schools
- Restraint and seclusion : resource document
- Estate planning